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Expanding Our Reach. Strengthening Our Impact.
LGDA is now the Lymphatic Malformations Alliance. Discover the next chapter of our mission. 

Other Videos

Expanding the Spectrum of Gorham Stout

The Rare Bone Disease Alliance hosted a pivotal webinar titled “Expanding the Spectrum of Gorham‑Stout Disease”, featuring insights from Dr. Michael Kelly, Professor of Pediatrics at Northeast Ohio Medical University, and Dr. Michael Dellinger, Associate Professor at UT Southwestern. They explored the challenges of treating this rare lymphatic–bone disorder and introduced groundbreaking preclinical research guiding future therapies.

Be Part of What Comes Next

Together, patients, families, clinicians, and researchers are changing the future of lymphatic malformations. 

Your donation helps make that progress possible.

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