What We Do
The Lymphatic Malformation Alliance unites patients, families, clinicians, and researchers to accelerate understanding, expand access to care, and drive breakthroughs for isolated lymphatic malformations and complex lymphatic anomalies so no one faces this journey alone.
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A New Name. The Same Mission.
You may know us as LGDA. Today, we're proud to be the Lymphatic Malformations Alliance—a name that reflects our growing community and our commitment to expanding support, advancing research, and strengthening connections across the lymphatic malformations community. While our name has changed, our mission remains the same: bringing clarity, connection, and progress to patients, families, clinicians, and researchers. Because rare should never mean alone.
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Easy to understand explanations, treatment information, guides and resources for both isolated lymphatic malformations and complex lymphatic anomalies.
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Connect with patients, families, and caregivers who understand the realities of living with isolated lymphatic malformations or complex lymphatic anomalies.
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Discover the latest research, clinical trials, and scientific progress shaping the future of lymphatic malformations.
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"I've got big plans. My condition is part of my journey, but it doesn't define where I'm going."
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Ashley - parent, United States"When everything felt so uncertain, we learned to celebrate every win, no matter how small. Those small victories reminded us of how far Finnley had come."
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Chante - parent, United States"It took 74 days, but we were finally discharged and ready to go home. Her amazing doctors saved my babies life. And I am forever grateful."
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Raised for ResearchOver $1 Million
News
New research reveals how immune cells help drive lymphatic malformations caused by PIK3CA mutations and points toward future combination treatments that may improve patient care.
Parents worry whether long-term sirolimus could affect their child's growth. A study of children with vascular anomalies found no significant changes in height or weight over two years of treatment. Here's what the research means for families.
Be Part of What Comes Next
Together, patients, families, clinicians, and researchers are changing the future of lymphatic malformations. Your donation helps make that progress possible.
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Hear from patients and families navigating life with lymphatic malformations.
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Connect one-on-one with someone who understands the challenges of living with or caring for someone with a lymphatic malformation.
