The International Patient Registry for Lymphatic Malformations (LM Patient Registry) is now open for enrollment.
The LM Patient Registry is a global research initiative that collects information directly from people affected by lymphatic malformations (LMs) and complex lymphatic anomalies (CLAs) and their caregivers. By sharing information about your diagnosis, symptoms, treatments, quality of life, and experiences over time, you can help researchers build a better understanding of these rare and complex conditions.
Information collected through the LM Patient Registry can help identify trends across the LM and CLA community, support future research, and contribute to the development of better care and treatments.
Your experience can help shape the future of LM and CLA research.
Want to learn more before joining? Read our blog post to learn more about the LM Patient Registry. You can also find more in-depth resources on the LM Patient Registry website, including who can participate, what to expect, frequently asked questions, and privacy and research information.
If you were part of the previous LGDA Patient Registry: you should have received an email from IAMRARE® with a link to activate your account. Please use that link rather than creating a new account, so your past responses carry over. If you can’t find it, check your spam or junk folder, or email us at registry@lmalliance.org.
The International Patient Registry for Lymphatic Malformations is supported by:
